Research Design Service: West Midlands
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Muscular Dystrophy UK: Nemaline myopathy natural history study

  Monday, 18 Jul 2022 | Funding Deadline

Muscular Dystrophy UK wish to support a natural history study that will benefit future clinical trials by helping to identify suitable patients and reliable/viable outcome measures. Applications should include multiple outcome measures (and where possible include multi-system measures) to be of maximum value to researchers and industry. Ideally the study would provide robust prospective data and, if possible, should have scope to collect patient reported outcome measures (PROMs).

Funding of up to £600,000 is available for a single study of up to three years’ duration for UK-based researchers to study the natural history of nemaline myopathy. Collection of natural history data should be multi-centre and of sufficient duration and size to collect relevant and useful data.

Deadline for proposals: 18 July 2022
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